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My son Jason is in his second year at National Star. And I want to tell you what an impact this wonderful charity has had on Jason’s life already.
The moment Jason was born, I knew something was wrong. He was whisked away to intensive care, and we were told that his umbilical cord had been wrapped around his neck and body, starving him of oxygen. But nobody could tell us at that stage what that meant, or what life was going to be like for Jason.
When Jason was six months old the doctors confirmed what we had feared: the oxygen deprivation he had experienced at birth had left Jason with a brain injury, cerebral palsy affecting his whole body and no voice. The future was so uncertain.
Jason was 18 when we came to look round National Star. As soon as I walked through the doors I had a good feeling. I could see Jason there, and more importantly so could he. He was just as excited as we were. The thought of Jason moving away from home where we had cared for him all his life made us feel sick with worry, but we knew National Star was the right place for him. We had to hand over our precious boy to the care of others, and that was scary. We needn’t have worried. Being at National Star has been brilliant for Jason. It’s unbelievable how far he has come.
Jason now uses an eye-gaze communication system, which enables him to speak by moving his eyes across the screen with his electronic communicator to spell out words which are then spoken out loud electronically. His next goal is learning to drive his electric wheelchair using his eye gaze system. At the moment he can’t do this, but with lots of hard work and determination on his part, and the incredible specialist care and support provided by National Star, I’m sure he will. He’s gone from being a baby whose future was so uncertain to a confident and articulate young man who’s gaining his independence. We’re extremely proud of him and can’t wait to see what’s next for him.
National Star is transforming Jason’s life – he is so much more confident and independent, and doing things we never thought possible. Please help transform the lives of other young people like Jason by making a donation to National Star this Christmas.
Thank you so much for reading our story.
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