Dylan’s story

Dylan’s journey with National Star

Dylan is a bright and observant young man learning on our Personal Development for Active Citizenship pathway. He has complex medical needs, communication barriers, and brings humour and determination to each day. Dylan thrives within a structured and multi–disciplinary environment. A personalised timetable balances therapy, education, and emotional wellbeing. Dylan is progressing toward his goals of communication, independence, and self-confidence.

Communication and connection: finding his voice 

Dylan is non-verbal. Despite this he is an extremely expressive communicator. He uses an Augmentative and Alternative Communication device (AAC) alongside vocalisations and gestures to engage with other people. He enjoys using a laptop during sessions with his speech and language therapist, working collaboratively. Dylan begins social interactions by waving hello and enjoys using humour to connect. When asked how he was, he jokingly used his device to say, “I want to be sick” before following up with “excited,” showing both his wit and emotional insight. 

During speech and language therapy sessions, Dylan continues to explore new ways of communicating. 

Managing anxiety and transitions: a need for continuity 

Dylan prefers quiet, predictable environments and becomes anxious in crowded or busy settings. For instance, during a class trip to see animals, Dylan felt uneasy due to the number of people around him. In quieter classroom settings, he is engaged and focused on manageable tasks. An example of his strong environmental awareness is demonstrated by his efforts to switch off the lights as he leaves a room.  

Due to the 24-hour care he requires and a lifelong need for close family support, Dylan has never lived away from home. He attends college as a day student, travelling each day from Bristol with a member of his care team. To reduce disruption in routine, Dylan’s team support him throughout his daily activities at college, in collaboration with National Star. This provides essential continuity; a consistent presence of familiar people is a vital part of Dylan’s success. 

Dylan receives support from a multi-disciplinary team. His team includes speech and language therapists, physiotherapists, occupational therapists, and music specialists. Combined, they help bridge the gap between home and college environments. 

Physical development and overcoming barriers 

Before joining National Star, Dylan was advised not to physically exert himself due to a congenital heart condition. This restriction shaped a limited lifestyle during childhood. However, since starting at National Star, Dylan has experienced a remarkable transformation in his physical capabilities. 

Through consistent physiotherapy sessions, Dylan has developed strength and confidence. He now has a treadmill at home and makes regular use of the trikes at college. This physical progress marks a significant shift from the limitations once placed on him. 

As well as his physical development, Dylan uses a powered wheelchair with confidence. He knows his way around the college and often directs staff to his next session, showcasing both memory and orientation skills. 

Health and safety: a carefully managed routine 

Dylan’s medical needs are complex and need close monitoring. He has a tracheostomy tube that can become blocked, so suctioning is regularly needed to ensure he can breathe freely. He also has an underlying heart and lung condition that requires hourly oxygen level checks. When oxygen is low, he shows visible signs, requiring immediate attention. Despite these challenges, Dylan remains engaged in learning and social experiences. 

Looking ahead: continued growth in a supportive environment 

Now in his final year at National Star, Dylan is preparing for the next stage of his adult life with increased independence and a stronger sense of self. His journey from restricted physical movement to active participation, is a powerful example of how tailored support can help young people with complex needs reach their full potential.