National Star students help shape future SEND policy

National Star students are helping to influence government policy that will impact future young people with disabilities.

They took part in a focus group hosted by the Parent and Carer Alliance CIC with the National Council for Disabled Children to share their views on the government’s SEND White Paper.

The session, which was hosted at the Barnwood Trust, was designed to ensure children and young people with disabilities were included in the consultation process.

The session focused on accountability, understanding entitlements, and ensuring services are transparent when things go well – and when they do not.

National Star students highlighted the need for the right support to live and learn, feel safe, have access to adapted information, and be recognised as individuals with their own identity. They also emphasised the importance of skilled staff, strong relationships, and feeling genuinely valued.

Discussions explored key areas of support, including mental health, therapy, assessments, specialist equipment, and opportunities beyond the classroom. Learners stressed the importance of choice, particularly when it comes to therapists and support that meets their needs.

Student Rose said: ‘I was pleased to be asked to take part because it is really important for people who are neurodivergent to have their voice heard in medical settings, schools and work.

‘It’s not easy to understand people like me unless I have my voice heard about what can be difficult. Just reading about us does not give an accurate view, we need a voice to be able to communicate what works best for us. The difference in EHCP meetings when I was talked “to” and not just “about” was huge. I didn’t feel put down and I didn’t feel I had to agree to patronising ideas.’

A strong theme throughout was the importance of communication. Learners said positive outcomes come from professionals working together, keeping them informed, and making changes with care.

‘National Star is passionate about the importance of those with lived experience being at the heart of all decisions affecting their lives,’ said Lynette Barrett, Chief Executive Officer at National Star.

‘Events such as this hosted by the National Council for Disabled Children will ensure young people’s voices are heard by the government. We would like to thank the Parent and Carer Alliance CIC and the Barnwood Trust for enabling National Star students to be part of this consultation.’